Week Ten
Sunday, February 2, 2003
Weight:      4 lbs. 3.5 oz. (1916 grams)
Feedings:  30 cc of Breast Milk (30 cal)
BM:           Green
We were told today that we should stop expecting her to go home in early March.  Because she is still on the ventilator we should expect her home in the middle of April (if everything goes well).  This was disheartening.  We really want her home, but understand that we have to do what is best for her.
Bailey is about the same today as she was yesterday.  Her breath rate was raised to 32 BPM and her pressure support (how much pressure the vent gives her to help her take a self initiated breath) went up to 13.  I don't know if I have ever mentioned it before, but all of the pressure settings on the vent are measured in centimeters of water.  Her CPAP stayed at 8.  Her oxygen needs declined slightly to 37%.  Her stool is green again which makes me worry that she has another infection.  The green stool seems to come and go with her infections.  She has also had some trouble with regular BM's so the nurses have been giving her suppositories.
The following pictures are from Baileys bath.
Monday, February 3, 2003
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Weight:      4 lbs. 5.5 oz. (1970 grams)
Feedings:  32 cc of Breast Milk (30 cal)
BM:           Green
Bailey's day today was about the same as yesterday.  Her breath rate was increased to 36 BPM and her pressure support stayed at 13.  Her feedings were increased to 32 cc to help her gain some extra calories for use in lung development.
The cultures they took a few days ago came back positive.  They showed that she has Klebsiella.  The doctors have decided not to give Bailey any antibiotics at this time.  They will watch her closely and see if her body can fight off the bacteria.  I guess they figure she is old enough (and big enough) to try and fight this on her own.  The main reason they have decided to wait on the medication is due to the fact that they want to avoid any side effects from another prolonged period of antibiotic treatment.
Tuesday, February 4, 2004
Weight:      4 lbs. 6.5 oz. (1992 grams)
Feedings:  32 cc of Breast Milk (30 cal)
BM:           Green
Not much changed today.  All of Bailey's vent settings stayed the same.  She extubated herself again today at about 3:30 pm.  The following are pictures of my beautiful daughter.
Wednesday, February 5, 2003
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Weight:      4 lbs. 7.5 oz. (2032 grams)
Feedings:  32 cc of Breast Milk (30 cal)
BM:           Green
The hospital called today to inform us that the Doctors are concerned about Baileys slow weight gain.  She looks huge to me, but I trust the doctors opinion over my own.
Bailey's vent settings have not changed, and she has been on 45% oxygen.  It is comforting to not see here take any steps backwards, but it is also frustrating to see her not make any progress for long periods of time.
The ophthalmologist came in today to do another checkup on Bailey.  He was surprised to see how bad her eyes had gotten in such a short period of time.  Bailey's right eye has progressed to Stage 2+ and her left eye is slightly worse.  The doctor said he would be back in two days to check on her again and that she would most likely need surgery this weekend.  The surgery would use a laser to cauterize the abnormal growth of the vessels.  This also stops the development of the eye.  Bailey will lose some peripheral vision, but she will go blind without the surgery.  The doctor also told us that there is a 20% chance she will go blind even with the surgery.  We are really worried.
Thursday, February 6, 2003
Weight:      4 lbs. 10.5 oz. (2110 grams)
Feedings:  34 cc of Breast Milk (30 cal)
BM:           Yellow
Ab. Girth: 30 cm
Bailey's breath rate was lowered to 28 BPM today!  Finally, some progress.
Today Bailey was put into what we call her asylum crib.  As you can see from the pictures this crib looks like what you would expect to see some kid caged up in if they happened to be in an insane asylum during the time of World War II (even more so when the sides of the crib are all the way up).  She is getting big enough that Bailey can not only handle, but needs more stimulation.  They have asked us to being in a mobile, a bouncy chair, music, and anything else that we think she might enjoy.
This crib reminds of how little she is.  It is much larger than her past beds and makes her look tiny.
Friday, February 7, 2003
Weight:      4 lbs. 13 oz. (2188 grams)
Feedings:   34 cc of Breast Milk (30 cal)
The ophthalmologist came today.  He said that Bailey's eyes were not yet bad enough for surgery.  I asked why they wait to do surgery instead of doing it as soon as the problem is diagnosed.  He told me that sometimes babies fix the problem on there own.  She was given a blessing again today and the worsening of her eyes has slowed considerably.  The doctor said he would come back on Sunday to do another checkup.
Bailey's set breath rate has dropped to 22 BPM.  All the rest of her settings have stayed the same.
Saturday, February 8, 2003
Weight:      4 lbs. 13.5 oz. (2192 grams)
Feedings:   37 cc of Breast Milk (30 cal)
Not much change today in Bailey today.  The only two changes were that her breath rate was lowered to 20 BPM and her feedings were increased to 37 cc.
Bailey is beginning to act like a real baby.  She now gets bored laying on her back all day.  If she is un happy she arches her back and tries to roll over (this is a major no-no because of her breathing tube).  To help remedy this problem we try not to hold her in a laying down position any more.  Sometimes we lay her on a pillow on our lap and make faces at here.  We also bought her a Winnie the Pooh mobile and a bouncy chair.  She liked her mobile, but she didn't use her bounce chair at all today.  Maybe she will use it tomorrow.  We also got on the ball as parents and bough our daughter a crib and mattress that now reside in the computer/nursery.
We are still nervous about her eyes and look forward to the ophthalmologists visit tomorrow.