Week Six
Sunday, January 5, 2003
Weight:     2 lbs. 15 oz. (1325 grams)
Feedings: 26 cc of Breast Milk (24 cal)
As a result of Bailey's deep suction yesterday, her x-rays looked better today.  Her oxygen needs continue to stay low and stable.  I got to hold her today for about an hour and a half.  I cradled her in my arms for the first time and it felt wonderful.  In this position I could look at her cute little face while I sang to her.
Bailey had her first bath in a tub today.  I wasn't there, and neither was the camera, but one of the nurses took these pictures of her.  Mom said she didn't like the water at first, but she got used to it quickly and enjoyed the bath.  Bailey's last line still isn't out, so the nurse held her arm out of the water.  Although they usually wait to give babies a tub bath until they are 1500 grams and have no lines, the doctors said that we can continue to give them to her as long as she continues to do well.
However, they discovered today that Bailey is growing a new bacteria in her breathing tube.  It is called Enterobacter.  I'm not sure what it is but I'm sure it isn't good.  I was told that this essentially means that Bailey has pneumonia  To combat this, they have taken Bailey off the Vancomycin (that she has been on since Dec. 23) today and they are going to continue with the Gentmicin for as long as Bailey can tolerate it.  I guess that line last line won't be coming out anytime soon.
Monday, January 6, 2003
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Weight:     2 lbs. 15.5 oz. (1354 grams)
Feedings: 27 cc of Breast Milk (24 cal)
Head:       27.5 cm
BM:          No BM's today but was given a suppository
Bailey didn't have a very good day today.  Bailey's breathing tube had to be removed so that they could do a deep suction on her lungs.  They removed a lot of gunk from her lungs.  Her x-rays weren't looking so god either, but they looked better after the suction.  The nurses also told us today that the eye doctor will be in next week to check on Bailey's eyes.
Bailey also had another ultrasound of her abdomen to follow up with the one given to her on December 12th.  This ultrasound showed the same hydronephrosis in the left kidney that was seen on the 12th.  Perhaps Bailey will have to have Kidney surgery when she is older just like her mom.
Tuesday, January 7, 2003
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Weight:     3 lbs. 2.5 oz. (1425 grams)
Feedings: 28 cc of Beast Milk (24 cal)
BM Morn: 2 yellow
BM Eve:    1 yellow
Bailey had another rough day today.  She was breathing 77% pure oxygen and the oxygen saturation level of her blood was only 88% (she normally breaths 35% pure oxygen with a saturation of 92%).  This is a little scary for two reasons.  First, Bailey's saturation must stay above 84% and should really be in the low 90s.  The closer she gets to breathing pure oxygen the harder it is to feel at ease about her breathing because they can't turn up her oxygen if she dips below 84% for any reason.
The second reason this is scary is because no one can really tell us why this is happening.  I need to find a doctor and ask some real specific questions tomorrow.
Because she was having a bad day, we didn't give Bailey a bath today, but we did get to hold her.  I love holding my daughter.
While we were there tonight they took another x-ray of Bailey's chest.  They have a portable machine that they wheel right up to her bed so they don't have to move the baby.  It can be seen in the following picture.  The x-ray machine has the number "4" on it that is visible at the top center of the picture.
Wednesday, January 8, 2003
Weight:     2 lbs. 15.5 oz. (1354 grams)
Feedings: 28 cc of Breast Milk (24 cal)
Ab. Girth: 25 cm
BM Update: Back to regular
Bailey is still having a rough time.  While her oxygen needs are not as high as they have been, they are anything but stable.  Her saturation is constantly swinging from too high to too low.  Because she wasn't feeling well we decided not to give her a bath but we did hold her for a little while skin-to-skin.
Today they started Bailey on Meropenem.  This is an antibiotic to treat the Enterobacter.  She will be on this drug for 10-14 days.  In addition, they started giving Bailey Sodium Chloride today with each feeding.  This is to help bring her natural sodium levels up.
Thursday, January 9, 2003
Weight:     3 lbs. 2 oz. (1412 grams)
Feedings: 28 cc of Breast Milk (24 cal)
Ab. Girth: 25 cm
Today I got my answer as to why Bailey hasn't been feeling well.  It seems that she once again has a staff infection in her blood.  Until they can identify the type of staff, they have started the Vancomycin again.  I held Bailey most of the afternoon.  I got to hold her from 2:00 pm until 4:30 pm.  It was nice to just rock her in a chair and hold her close to me.  Stacey held her for about an hour and a half in the evening.  She decided to hold Bailey the way I like to hold her and she enjoyed being able to look at her while she held her.
We gave Bailey a very quick cotton ball bath tonight because she still isn't feeling well.  I pray she gets better soon.
Friday, January 10, 2003
Weight:     3 lbs. 5 oz. (1505 grams)
Feedings: 30 cc of Breast Milk (24 cal)
Bailey had a slightly better day today.  She was still swinging a little on her oxygen saturation, but she was only requiring 50% pure oxygen.  The nurses also told us that her first blood culture (the ones that tested positive yesterday) came back negative.  This was a good sign that the samples were contaminated and that she doesn't really have an infection in her blood.  However, they will keep her on the Vancomycin until they are sure.
Saturday, January 11, 2003
Weight:     3 lbs. 4.5 oz. (1490 grams)
Feedings: 30 cc of Breast Milk (24 cal)
Ab. Girth: 27 cm
BM:          Green
Bailey's oxygen needs went up again today.  They tried to suction her lungs, but the secretions are too thick and won't come out.  In addition, her stool is green and she has had a lot of gas.  They are still unsure of exactly what is going on, but they are running more tests.
Stacey and I each got to hold her today.  She seems to do very well when she is being held.  In fact, while Stacey was holding her, her oxygen needs dropped to the lowest we have ever seen (about 27%) and she stopped swinging for about a half hour.  This was very encouraging.